Posts Tagged ‘Cancer Research’

Genetic Susceptibility and Biomarkers of Platinum-Related Toxicities Research Study

I finally took part in that Dana-Farber and University of Rochester Medical Center (URMC) research study yesterday–evaluating the long-term health of men that have been treated for germ cell cancer with cisplatin chemotherapy. This visit was scheduled for December, but I mistakenly double-booked my calendar with one of Jess’ ultrasounds. Needless to say, the ultrasound was a tad more important. For those that haven’t seen Jess’ blog, the boy was 3lbs 7oz, and the girl was 3lbs 1oz. The c-section is scheduled for March 13!

The research appointment began at the Yawkey Center. After the pleasantries, the research assistant flipped through her paperwork and stated “we’re going to be taking a lot of blood from you today.” Oh my. I replied with a nervous laugh and a “…did I mention my dislike needles?”

Thankfully the phlebotomist was flawless in execution, and the researcher’s presence gave me reason to keep my jaw flapping and otherwise distracted from the tray of viles on my right.

The next step was to visit Brigham and Women’s for a hearing test. The room was small, maybe 8’x8′ with low ceilings and a door that resembled a walk-in fridge. I put on a pair of bulky headphones and was handed a wired, push button remote. The researcher and technician relocated to an adjacent room separated by a glass window. Press the button when you hear a beep. Left ear, right ear. Repeat the words spoken. All uneventful including the result. My hearing is normal.

I completed an at length survey regarding well being and habits. Two things, I’ll mention. First, the alcohol consumption question had incorrect/incomplete ranges for me to answer correctly. I brought this to the attention of the researcher. I believe the running joke is that you tell your primary care physician how many drinks you consume per week, and he knows you’re lying, and then doubles it in his records. However, for science, I wanted to answer truthfully. I either had to choose an answer of “drinks per day,” which would make me look like a raging alcoholic, or “drinks per week” with a range that was not right either. The second thing is regarding side effects, and the purpose of this study. The only thing I continue to have is the cold/tingling hands and feet, also known as Raynaud’s disease. This isn’t new, it started immediately after chemo. Hopefully the URMC and Dana-Farber researchers will discover new ways to reduce incidents of Raynaud’s for future patients. In the meantime, no big deal.

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Annual Checkup

I had my fourth annual checkup and CT scan today. All results were healthy. I have one more CT scan in my foreseeable future next December 2014 which will then mark five years post diagnosis/treatment. Assuming the 2014 results are normal, I will only require an annual chest x-ray and blood draw for a biomarker check for 2015 and beyond.

I signed up for a Dana-Farber and University of Rochester Medical Center (URMC) research study titled “Genetic Susceptibility and Biomarkers of Platinum-Related Toxicities” during my visit today. This study is evaluating the long-term health of men that have been treated for germ cell cancer with cisplatin chemotherapy. The researchers claim that small amounts of cisplatin remain in a patient’s body for years after treatment and this study is seeking to identify the side effects. Dana-Farber is contributing 275 patients to the study. I will be coming back to Dana-Farber next week for a blood draw, hearing test, and questionnaire for the study.

Full steam ahead on the twin babies front. Jess prefers the names Keano and Reeves after her favorite actor, but I’m on the fence.

Seeking Sponsors

Boston Marathon Jimmy Fund WalkI am walking 26.2 miles (on the same route as the Boston Marathon) to support cancer research on September 12, 2010.

This is a fundraising event  for the Dana-Farber Cancer Institute, an organization that provided me with the utmost care and support over the last year. In addition to treating patients, the institute conducts research to improve its care and develop alternative treatments that are less invasive and poised for greater outcomes for all types of cancer.

The folks at Dana-Farber, particularly the nursing staff on the infusion floor, are genuinely good people, fulfilling a role that I couldn’t bear on a daily basis. For this reason, I am pleased to support their fundraising efforts, and will soon learn what it feels like to walk 26 miles! I’m pretty sure that I have never walked or hiked more than 13 miles in one day- I think it will take about seven hours, unless I miraculously turn into a conditioned runner!

If you are interested in sponsoring me, please visit my donation page:
http://www.jimmyfundwalk.org/2010/stetson